Women with epilepsy
Women with epilepsy  

Professional page

About Kim Morley

Kim is an award winning registered midwife, nurse and independent nurse prescriber with additional qualifications in epilepsy, complex pregnancies, child protection, pharmacology, research in evidence based practice, diagnosis and history taking, epidemiology and advanced clinical practice. Kim specialises in antiepileptic drug prescribing management & all aspects of epilepsy. She conducts a unique service alongside her obstetric colleagues, personalising holistic care and treatment support from the preconception years to motherhood. In addition, she works as an epilepsy specialist nurse for neurology; is an assessor for MBRRACE; expert advisor for Epilepsy Action, SUDEP Action & CareEpilepsy and represents the RCM on the MHRA valproate stakeholders committee.  

Copyright Simon Way Photographer

 

Proud to be part of this EMA first public hearing in 2017

Contact details for further information, presentations & lectures

Kim Morley, Epilepsy Specialist Nurse/Midwife Practitioner, Florence Portal House, Royal Hampshire County Hospital, Romsey Rd, Winchester, SO22 5DG. Email: kim.morley@nhs.net Appointments: 01962 824210 Facebook Group: women with epilepsy Twitter: @epilepsymidwife  

The new maternity epilepsy toolkit

Click link to view and print 4 page double sided document. Reference: Morley K (2018) Maternity epilepsy shared care toolkit. Available from: www.womenwithepilepsy.co.uk
Pregnant women with epilepsy-a maternity[...]
Adobe Acrobat document [1.2 MB]
A new peer reviewed maternity epilepsy toolkit designed to improve history taking; reduce risk, increase knowledge and awareness and provide a summary of a woman’s epilepsy management in pregnancy. Documentation should start at the booking appointment and continue throughout pregnancy and the postnatal period. Please use alongside information from the RCOG green top epilepsy in pregnancy guidelines (2016) and this website. Click PDF above to download and print in colour, double sided. Qualitative research in progress. 

Copyright Kim Morley: please reference if used in any publications. 

Presentations & study days last 12 months

15/06/18 SHIP Academy, Caring for Sick Women. Neurology. Diffential diagnosis for unresponsiveness, GCS, AVPU and reflexes. 

09/05/18 Sharing responsibility for women of child-bearing age taking valproate and other AEDs, Psychiatrists, Southampton.

23/02/18 First seizure to diagnosis and emergency management. ED Practitioners HHFT

21/02/18 Epilepsy impact and special groups, HHFT Medics

20/02/18 Sharing responsibility for women of child-bearing age taking valproate and other AEDs, Pharmaceutical Group of the European Union (PGEU), Brussels.

26/01/18 Women with epilepsy and learning disability. Psychiatry and LD. Poles Copse, Otterbourne

24/01/18 Specialist support for women taking valproate and other AEDs. Psychiatry. Thatchbury Mount

07/12/17 MBRRACE-UK Saving Lives, Improving Mothers’ Care Lessons learned to inform maternity care from the UK and Ireland Confidential Enquiries into Maternal Deaths and Morbidity 2013–15 (Manchester) Two Poster Abstract Presentations.

28/11/17 MBRRACE-UK Perinatal Confidential Enquiry into Term Intrapartum Stillbirths and Intrapartum Related Neonatal Death Report Launch Meeting (London) Two Poster Abstract Presentations 

15/11/17 Royal Hants County Hospital Medics, Epilepsy diagnosis and treatment. 

15/11/17  Valproate in women of child-bearing potential, Psychiatry, Parklands Hospital Basingstoke

08/11/17 Preconception & Pregnancy Management in women with epilepsy, GP conference, St Peters Hosp 

4-6/10/17 International League Against Epilepsy (Leeds) Poster Abstract Presentation Agenda

26/09/17 Pharmacovigilance Risk Assessment Committee (PRAC) Public Hearing, European Medicines Agency. Professional Speaker Agenda

07/09/17 North Hampshire CCG, 'Specialist support for all women with epilepsy and those taking AEDs'

14/08/17 Increasing epilepsy awareness, Andover War Memorial Hospital, Nurse training

07/08/17 First seizure, pearls and pitfalls. Medics training, Royal Hants County Hospital 

07/07/17 St Helen's & Whiston Hospital RCM Branch: Epilepsy training day for midwives

23/06/17 Wessex & Oxford Obstetric Medicine, Newbury, Preconceptual & Pregnancy Management in women with epilepsy: Best practice. 

21/06/17 Royal Hants County Hospital Medics, Increasing epilepsy awareness

20/06/17 RCM HHFT Branch, Embracing midwifery support to optimise care for women with epilepsy

05/06/17 McGill Ward Royal Hants County Hospital Increasing epilepsy awareness  

05/05/17 Barnsley Hospital NHS Foundation Trust. Embedding a maternity epilepsy toolkit into clinical practice. Obs, Gynae and midwifery attendees. Improving safety for pregnant women with epilepsy

Learn about care for women with epilepsy in pregnancy.                                               RCM Better Births Webinar Morley K (2016) 

News update

17/07/18 Medicines taken during pregnancy: please report suspected drug reaction, including in the baby or child, on a Yellow Card GOV.UK

 

14/07/18 at 12pm. 'Picnic in the Park' Join us with your families at 'Queen Elizabeth Olympic Park' Meadow off Essex Way (near Velodrome), London, E20 1DY, UK. Please bring your own picnic. This event will provide an opportunity of getting to know other women with epilepsy. Further details and booking click Epilepsy Action.

Look forward to meeting you there.

 

16/06/18 Cannabis treatment for epilepsy. Is there enough evidence of its efficacy?  Pharmaceutical Journal

 

7/06/18 Pharmacovigilance Risk Assessment Committee (PRAC) assessment report for valproate. 

valproate and related substances

 

18/05/18: Please click:Valproate use for women & girls for updated patient valproate booklet & cardHealth Professional Booklet and valproate annual risk assessment form. Important all women receive specialist review of their treatment promptly. A pregnancy prevention plan is recommended for any girl or woman continuing this drug during child-bearing years.Long acting reversible contraception, click FPA patient guide. For professionals: CEU Clinical Guidance: Drug interactions with hormonal contraception

 

14-20/05/18 National epilepsy week. @epilepsymidwife Epilepsy Action  Epilepsy Research UK Epilepsy Society SUDEP Action Epilepsy Scotland 

 

27/04/18 Taking valproate during pregnancy is a serious risk: An update on practice implications:

Jonathan Sher. Click: Interrnational Journal of Birth and Parent Education

 

24/04/18 GOV.UK new alert asking for patient reviewand further consideration for risk minimisation measures: Valproate and developmental disorders

 

28/03/18 Educational attainment of children born to mothers with epilepsy 

Journal of Neurology, Neurosurgery and Psychiatry

 

26/03/18 Purple Day for Epilepsy. Do get involved, click: Epilepsy ActionEpilepsy Society

SUDEP Action and Epilepsy Research

 

23/03/18 Latest recommendations from European Medicines Agency New measures to avoid valproate exposure in pregnancy

 

9/02/18 Pharmacovigilance Risk Assessment Committee (PRAC) recommends new measures to avoid valproate exposure in pregnancy. Click link and take survey on page 3  European Medicines Agency

 

5/01/18 Medscape Obs/Gynae & Women's Health. Topiramate dose in Mom affects oral cleft Risk in child

 

8/12/17 Buccolam (buccal midazolam) brand. Class 4 Medicines defect Information: Device warning

 

7/12/17 MBRRACE-UK launch lessons to be learnt and recommendations for specialist care for women with epilepsy : MBRRACE-UKMBRRACE identified a number of women who died from epilepsy stopped their AED treatment early in pregnancy because they or their doctors were not aware of the risk to them and their unborn babies due to uncontrolled seizures. Women who received specialist advice preconception or in early pregnancy encountered the least complications in pregnancy for them and their developing baby. It is imperative women with epiepsy of child-bearing age receive specialist care before and during pregnancy: MBRRACE-UK NPEU. Proud to be part of this chapter group.

 

24/11/17: Antiepileptic drugs: updated advice on switching between different manufacturers' products: Click GOV.UK

 

20/11/2017 CEU Clinical Guidance: Drug interactions with hormonal contraception 

 

19/10/17 Valproate and foetal anticonvulsant syndrome discussed in parliament. View the debate 

 

26/09/17 Pharmacovigilance Risk Assessment Committee (PRAC) Public Hearing on valproate and related substances, European Medicines Agency. Pleased to be speaking at this hearing on behalf of women with epilepsy.

 

22/09/17 Many women still not aware of risks of taking valproate in pregnancy survey conducted by Epilepsy Society, Epilpsy Action and Young Epilepsy reveals: Link to Epilepsy Action news page 

 

Are you a girl or woman under the age of 50, with epilepsy? Please take part in this survey to find out how many women are aware of the risks around the epilepsy drug sodium valproate during pregnancy. The survey is being run by Epilepsy Society, Young Epilepsy and Epilepsy Action: 

https://www.surveymonkey.co.uk/r/SVArisks Please fill in the survey and share with friends and family.*Forms of sodium valproate include Epilim, Episenta and Epival. It may also be called valproate or valproic acid. 18 August 2017

 

European Medicines Agency Public Hearing on valproate risks when prescribed in pregnancy on 26th September 2017. Chance to have your voice heard and take part. Do read Public Hearings Guidance before completing the Application form for participation Closing date 25 August 2017: sorry expired now.

 

16/6/17 New RCM epilepsy i-learn module launched for midwives. Click RCM epilepsy in pregnancy i-learn So proud to have been asked to write this on behalf of the RCM.

Professional guidelines

Royal College of Obstetricians and Gynaecologists (2016) Epilepsy in Pregnancy. Green-top Guideline No. 68. Royal College of Obstetricians and Gynaecologists

SIGN guidelines (2015) Diagnosis and management of epilepsy in adults

International League Against Epilepsy Guidelines, Reports & Position Papers on Epilepsy

NICE clinical guideline 137 (2012) The epilepsies: the diagnosis and management of the epilepsies in adults and children in primary and secondary care.

Research opportunities

Epilepsy Action Research studies

Epilepsy Society Research projects

Epilepsy Research UK Transforming lives through research

Other useful tools, articles, organisations and links

Al Wattar B, Tamilselvan K, Khan R, Kelso A, Sinha A, Pirie A, McCorry D, Khan K and Thangaratinam S (2016) Development of a core outcome set for epilepsy in pregnancy (E-CORE): a national multi-stakeholder modified Delphi consensus study, BJOG: An International Journal Of Obstetrics And Gynaecology, MEDLINE, EBSCOhost, viewed 14 December 2016.

Asadi-Pooya  AA (2015) Review: High dose folic acid supplementation in women with epilepsy: Are we sure it is safe?. Seizure: European Journal Of Epilepsy 27: 51-53

BNF on line service BNF publications

Bromley R (2016) The treatment of epilepsy in pregnancy: The neurodevelopmental risks associated with exposure to antiepileptic drugs. Reproductive Toxicology 64, 44th Annual Conference of the European Teratology Society 203-210

Bromley, R, Weston, J, & Marson, A (2017) Maternal Use of Antiepileptic Agents During Pregnancy and Major Congenital Malformations in Children. Jama 318 (17):1700-1701

CEU Guidance:Important contraception advice lamotrigine & enzyme inducing AEDs Drug interactions with hormonal contraception January 2017

Epilepsy Specialist Nurse Association (ESNA) Contact:ESNA online

Gov.UK: Sodium valproate alert abnormal pregnancy outcomes & new communication materials  Feb 16

Generalised Anxiety Disorder Assessment: GAD-7 Anxiety Test Questionnaire

GP and Health Professional Resources: Epilepsy Action Primary Care Resource Pack

Herzog A, Mandle H, Cahill K, Fowler K, Hauser W and Davis, A (2016) Contraceptive practices of women with epilepsy: Findings of the epilepsy birth control registry. Epilepsia (Series 4), 57(4): 630-637

ILAE Epilepsy and Womens Group Archive epilepsy and women Joining together to make pregnancy outcomes better

Kinney MO and Morrow J (2016) Epilepsy in pregnancy BMJ 353:i2880 

Learning disability health charter

Lacey ASPickrell WOThomas RH, et al. (2018) 
Educational attainment of children born to mothers with epilepsy 
J Neurol Neurosurg Psychiatry Published Online First: 27 March 2018. doi: 10.1136/jnnp-2017-317515

Multi-drug Interaction Checker Medscape.com drug/drug/interaction/checker

NHS Choices: Moodzone: Self help toolkit for Stress, Anxiety & Depression

Neurochecklist includes evidence based advice for epilepsy diagnosis & management 

Patient health questionnaire (PHQ-9) Instrument for measurement of common mental health disorders

Panebianco M, Sridharan K and Ramaratnam S (2017) Yoga for epilepsy:  Cochrane Review 

Preventing maternal mortality: Its better to ask Royal College of Physicians and Surgeons of Glasgow & Royal College of Obstetricians & Gynaecologists.

Reiter S, Bjørk M, Daltveit A, Veiby G, Kolstad E, Engelsen B and Gilhus N (2016) Life satisfaction in women with epilepsy during and after pregnancy. Epilepsy & Behavior 62: 251-257 http://www.sciencedirect.com/science/article/pii/S1525505016302037

Royal College of General Practitioners Clinical epilepsy resources

Royal College of Obstetricians and Gynaecologists: RCOG information leaflet for women with epilepsy in pregnancy

Royal College of Psychiatry: Mental Health Problems in Pregnancy

Spencer B (2015) 'Medications and Breastfeeding for Mothers With Chronic Illness' JOGNN: Journal Of Obstetric, Gynecologic & Neonatal Nursing 44(4): 543

Tomson T, Battino D, Bonizzoni E, Craig J, Lindhout D, Perucca E, Sabers A, Thomas S  & Vajda F (2015) Dose-dependent teratogenicity of valproate in mono-and polytherapy. Neurology 85 (10): 866-872

Tomson, TorbjörnFaravelli, Francesca et al. (2018) Comparative risk of major congenital malformations with eight different antiepileptic drugs: a prospective cohort study of the EURAP registry. The Lancet Neurology. 17(6): 530 - 538 The Lancet Neurology

UK Teratology Information Service UKTIS for information leaflets about topiramate, gabapentin, pregabalin, sodium valproate, carbamazepine and lamotrigine.

Voinescu PE, Page B, Pennell MD (2018) Delivery of a personalised treatment approach to women with epilepsy Semin Neurol 37(6):611-623

Weston J, Bromley R, Jackson CF, Adab N, Clayton-Smith J, Greenhalgh J, Hounsome J, McKay AJ, Tudur Smith C and Marson AG (2016) Monotherapy treatment of epilepsy in pregnancy: congenital malformation outcomes in the child Cohrane Database of Systematic Reviews 11 Available from: http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD010224.pub2/epdf  

Publications by the author

Morley K (2018) The Royal College of Midwives (RCM) Epilepsy i-module. Poster Abstract. Patient Safety Congress, Manchester    

Morley K (2017) The Royal College of Midwives (RCM) Epilepsy i-module. Poster Abstract. MBRRACE-UK Launch meetings, 2017, London and Manchester   

Morley K (2017)  Exploring midwives experiences of using a maternity epilepsy toolkit. Poster Abstract. MBRRACE-UK Launch meetings, 2017, London and Manchester.  

Morley K (2017) Exploring midwives experiences of using a maternity epilepsy toolkit. Poster Abstract 26 p68. The International League Against Epilepsy (ILAE) British Chapter Conference 2017, Leeds. 

Morley K (2017) Epilepsy i-learn module Royal College of Midwives. Available from: RCM Epilepsy i-learn module  

Morley K (2016, October) Validation of an epilepsy shared-care toolkit designed to reduce disparity in maternity care provision. Poster presented at the International League Against Epilepsy (ILAE) British Chapter Conference 2016, Dublin, Republic of Ireland. 

Morley K (2016) Specialist Midwifery (pt 2) The career journey of an epilepsy specialist midwife practitioner Epilepsy Professional  Autumn 2016 Leeds: Epilepsy Action (42): 24-27

Morley K (2016) More than a midwife Epilepsy Today September 2016 Leeds: Epilepsy Action (131): 18-20

Morley K (2016) Looking forward IN: Academy of Royal Colleges (eds) A vision of healthcare 20/20. London: Academy of Royal Colleges 102-103 pdf

Morley K (2016) Specialist Midwifery (pt 1) The career journey of an epilepsy specialist midwife practitioner Epilepsy Professional Summer 2016 Leeds: Epilepsy Action (41): 18-22

Morley K (2016) Antiepileptic drug management during pregnancy: A shared decision approach. British Journal of Midwifery 24(5): 353-361 Available from: http://www.magonlinelibrary.com/doi/10.12968/bjom.2016.24.5.353

Morley K (2016) Optimising midwifery care for women with epilepsy. Nursing in Practice. Available from: http://www.nursinginpractice.com/article/optimising-midwifery-care-women-epilepsy

Morley K (2010) Book review: Effective Migraine Treatment in Pregnant & Lactating Women: A Practical Guide. Authors: DA Marcus and PA Bain (2009) Humana Press The Obstetrician & Gynaecologist 12(1): 6 Link

Morley K (2009) Specialist midwife-epilepsy Disability, Pregnancy & Parenthood International 66. 

Morley K (2009) Sudden unexpected disablement Disability, Pregnancy & Parenthood International 66

Morley K (2008) Improving care for women with epilepsy. British Journal of Midwifery 16(10): 649-655 Available from: http://www.magonlinelibrary.com/doi/abs/10.12968/bjom.2008.16.10.31233

How can you empower women to manage their own epilepsy?
How can you empower women to manage thei[...]
Adobe Acrobat document [241.0 KB]
Print Print | Sitemap
© Kim Morley Please reference publication material used from this site.