Women with epilepsy
Women with epilepsy  

Professional page

About Kim Morley

Kim is a registered midwife, registered nurse, independent nurse prescriber and advanced clinical practitioner. She specialises in antiepileptic drug prescribing management & all aspects of epilepsy. She conducts a unique service alongside her obstetric colleagues, personalising holistic care and treatment support from transition, the preconception years and motherhood. In addition, she conducts the epilepsy specialist nurse service for HHFT (Winchester) & volunteers as an assessor for MBRRACE; expert advisor for Epilepsy Action, SUDEP Action & CareEpilepsy; represents the RCM on the valproate committee (MHRA) & maternal medicine steering group & reviews professional journal articles.  

Copyright Simon Way Photographer

 

MHRA valproate - pregnancy prevention programme (2018)

Contact details for further information, presentations & education sessions

Kim Morley, Epilepsy Specialist Nurse/Midwife Practitioner, Florence Portal House, Royal Hampshire County Hospital, Romsey Rd, Winchester, SO22 5DG. Email: kim.morley@nhs.net 

Facebook Group: women with epilepsy Twitter: @epilepsymidwife  

The new maternity epilepsy toolkit

Click link to view and print 4 page double sided document. Reference: Morley K (2018) Maternity epilepsy shared care toolkit. Available from: www.womenwithepilepsy.co.uk
Pregnant women with epilepsy-a maternity[...]
Adobe Acrobat document [1.3 MB]
A new peer reviewed maternity epilepsy toolkit designed to improve history taking; reduce risk, increase knowledge and awareness and provide a summary of a woman’s epilepsy management in pregnancy. Documentation should start at the booking appointment and continue throughout pregnancy and the postnatal period. Please use alongside information from the RCOG green top epilepsy in pregnancy guidelines (2016) and this website. Click PDF above to download and print in colour, double sided. Qualitative research on experiences of using the toolkit is currently in press

Copyright Kim Morley: please reference if used in any publications. 

Presentations and education sessions 

15/05/19 The epilepsy journey and optimal care for women with epilepsy. University of Southampton

10/05/19 Women with epilepsy, what's hot. Irish Epilepsy Nurse Group Meeting, Naas, Co Kildare 

14/04/19 Epilepsy Diagnosis. RHCH F1 and F2 training

02/01/19 First seizure: Pearls and Pitfalls. RHCH F1 and F2 training

17/11/18 Excellence in Women's Epilepsy Meeting Corpus Christi College, Oxford. 

2-3/11/18 Prevent 21 Summit, Corpus Christi College, Oxford Sudep Action

27/09/18 MBRRACE workshop Brighton & Sussex University Hospital NHS Trust 

15/06/18 SHIP Academy, Caring for Sick Women. Neurology. Diffential diagnosis for unresponsiveness, GCS, AVPU and reflexes. 

09/05/18 Sharing responsibility for women of child-bearing age taking valproate and other AEDs, Psychiatrists, Southampton.

23/02/18 First seizure to diagnosis and emergency management. ED Practitioners HHFT

21/02/18 Epilepsy impact and special groups, HHFT Medics

20/02/18 Sharing responsibility for women of child-bearing age taking valproate and other AEDs, Pharmaceutical Group of the European Union (PGEU), Brussels.

Proud to be part of this EMA first public hearing in 2017

Learn about care for women with epilepsy in pregnancy.                                               RCM Better Births Webinar Morley K (2016) 

News update

9/09/19 Epilepsy community calls for urgent action to prevent Brexit-related epilepsy deaths. Link: 

SUDEP Action

 

16/04/19  Valproate medicines & serious harms in pregnancy: New annual risk acknowledgement form Drug Safety Update volume 12, issue 9: April 2019: 2.

 

30/03/19 Guidance on valproate use in women/girls of childbearing years. Royal Colleges Guidance

 

28/03/19 Valproate in children, young people and adults NICE update

 

21/03/19 Medicines with teratogenetic potental: effective contraception/pregnancy testing: GOV.UK

 

18/12/18 Valproate medicines: are you acting in compliance with the pregnancy prevention programme? Gov.UK 

 

02/11/18 SUDEP Action Prevent 21 Summit, collaboration of families, professionals, patient support groups, staff, trustees and MP's from SUDEP Action passionate about reducing preventable deaths from epilepsy. Find out more:  SUDEP Action

 

26/09/18 Valproate Pregnancy Prevention Programme: actions required now from GPs, specialists, and dispensers GOV.UK

 

2/09/18 Midwives do read my latest article and learn about how you can optimise safety for women with epilepsy British Journal of Midwifery Look out for publication details of research into midwives experiences of using the maternity epilepsy toolkit later this year. 

 

17/07/18 Medicines taken during pregnancy: please report suspected drug reaction, including in the baby or child, on a Yellow Card GOV.UK

 

14/07/18 at 12pm. 'Picnic in the Park' Join us with your families at 'Queen Elizabeth Olympic Park' Meadow off Essex Way (near Velodrome), London, E20 1DY, UK. Please bring your own picnic. This event will provide an opportunity of getting to know other women with epilepsy. Further details and booking click Epilepsy Action.

 

16/06/18 Cannabis treatment for epilepsy. Is there enough evidence of its efficacy?  Pharmaceutical Journal

 

7/06/18 Pharmacovigilance Risk Assessment Committee (PRAC) assessment report for valproate. 

valproate and related substances

 

May 2018 AntiEpileptic drug Monitoring in PREgancy: a double-blind randomised trial on effectiveness and acceptability of monitoring strategies

Professional guidelines

Royal College of Obstetricians and Gynaecologists (2016) Epilepsy in Pregnancy. Green-top Guideline No. 68. Royal College of Obstetricians and Gynaecologists

SIGN 143 Diagnosis and management of epilepsy in adults

International League Against Epilepsy Guidelines

NICE clinical guideline 137 (2012) The epilepsies: the diagnosis and management of the epilepsies in adults and children in primary and secondary care. Guidelines

Research opportunities

Epilepsy Action Research

Epilepsy Society Research projects

Epilepsy Research UK Transforming lives through research

Other useful tools, articles, organisations and links

Association of British Neurologists: statement on use of marijuana (cannabis) related products in the treatment of complex epilepsies
ABN statement on use of marijuana (canna[...]
Adobe Acrobat document [274.5 KB]

Allotey J, Fernandez-Felix BM, Zamora J, Moss N, Bagary M, Kelso A, et al. (2019) Predicting seizures in pregnant women with epilepsy: Development and external validation of a prognostic model. PLoS Med 16(5): e1002802. PLOS Medicine

Al Wattar B, Tamilselvan K, Khan R, Kelso A, Sinha A, Pirie A, McCorry D, Khan K and Thangaratinam S (2016) Development of a core outcome set for epilepsy in pregnancy (E-CORE): a national multi-stakeholder modified Delphi consensus study, BJOG: An International Journal Of Obstetrics And Gynaecology, MEDLINE, EBSCOhost, viewed 14 December 2016.

Asadi-Pooya  AA (2015) Review: High dose folic acid supplementation in women with epilepsy: Are we sure it is safe?. Seizure: European Journal Of Epilepsy 27: 51-53

BNF on line service BNF publications

Bromley R (2016) The treatment of epilepsy in pregnancy: The neurodevelopmental risks associated with exposure to antiepileptic drugs. Reproductive Toxicology 64, 44th Annual Conference of the European Teratology Society 203-210

Bromley, R, Weston, J, & Marson, A (2017) Maternal Use of Antiepileptic Agents During Pregnancy and Major Congenital Malformations in Children. Jama 318 (17):1700-1701

CEU Guidance:Important contraception advice lamotrigine & enzyme inducing AEDs Drug interactions with hormonal contraception January 2017

Epilepsy Specialist Nurse Association (ESNA) Contact:ESNA online

Gov.UK: Sodium valproate alert abnormal pregnancy outcomes & new communication materials  Feb 16

Generalised Anxiety Disorder Assessment: GAD-7 Anxiety Test Questionnaire

GP and Health Professional Resources: Epilepsy Action Primary Care Resource Pack

Herzog A, Mandle H, Cahill K, Fowler K, Hauser W and Davis, A (2016) Contraceptive practices of women with epilepsy: Findings of the epilepsy birth control registry. Epilepsia (Series 4), 57(4): 630-637

ILAE Epilepsy and Womens Group Archive epilepsy and women Joining together to make pregnancy outcomes better

Kinney MO and Morrow J (2016) Epilepsy in pregnancy BMJ 353:i2880 

Learning disability health charter

Lacey ASPickrell WOThomas RH, et al. (2018) 
Educational attainment of children born to mothers with epilepsy 
J Neurol Neurosurg Psychiatry Published Online First: 27 March 2018. doi: 10.1136/jnnp-2017-317515
 

Muir Maxwell Centre:  Educational animation video for young people: Me and my epilepsy

Multi-drug Interaction Checker Medscape.com drug/drug/interaction/checker

NHS Choices: Moodzone: Self help toolkit for Stress, Anxiety & Depression

Neurochecklist includes evidence based advice for epilepsy diagnosis & management 

Panebianco M, Sridharan K and Ramaratnam S (2017) Yoga for epilepsy:  Cochrane Review 

Patient health questionnaire (PHQ-9) Instrument for measurement of common mental health disorders

Preventing maternal mortality: Its better to ask Royal College of Physicians and Surgeons of Glasgow & Royal College of Obstetricians & Gynaecologists.

Reiter S, Bjørk M, Daltveit A, Veiby G, Kolstad E, Engelsen B and Gilhus N (2016) Life satisfaction in women with epilepsy during and after pregnancy. Epilepsy & Behavior 62: 251-257 http://www.sciencedirect.com/science/article/pii/S1525505016302037

Royal College of General Practitioners Clinical epilepsy resources

Royal College of Obstetricians and Gynaecologists: RCOG information leaflet for women with epilepsy in pregnancy

Royal College of Psychiatry: Mental Health Problems in Pregnancy

Spencer B (2015) 'Medications and Breastfeeding for Mothers With Chronic Illness' JOGNN: Journal Of Obstetric, Gynecologic & Neonatal Nursing 44(4): 543

Thangaratinam S, Marlin N, Newton S, Weckesser A, Bagary M, Greenhill L, et al. AntiEpileptic drug Monitoring in PREgnancy (EMPiRE): a double-blind randomised trial on effectiveness and acceptability of monitoring strategies. Health Technol Assess 2018;22(23)

Tomson T, Battino D, Bonizzoni E, Craig J, Lindhout D, Perucca E, Sabers A, Thomas S  & Vajda F (2015) Dose-dependent teratogenicity of valproate in mono-and polytherapy. Neurology 85 (10): 866-872

Tomson, TorbjörnFaravelli, Francesca et al. (2018) Comparative risk of major congenital malformations with eight different antiepileptic drugs: a prospective cohort study of the EURAP registry. The Lancet Neurology. 17(6): 530 - 538 The Lancet Neurology

UK Teratology Information Service UKTIS for information leaflets about topiramate, gabapentin, pregabalin, sodium valproate, carbamazepine and lamotrigine.

Voinescu PE, Page B, Pennell MD (2018) Delivery of a personalised treatment approach to women with epilepsy Semin Neurol 37(6):611-623

Weston J, Bromley R, Jackson CF, Adab N, Clayton-Smith J, Greenhalgh J, Hounsome J, McKay AJ, Tudur Smith C and Marson AG (2016) Monotherapy treatment of epilepsy in pregnancy: congenital malformation outcomes in the child Cohrane Database of Systematic Reviews 11 Available from: http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD010224.pub2/epdf  

Publications 

In press Morley K (2019) Reducing risks for pregnant women with epilepsy: A qualitative study exploring experiences of using a toolkit at the antenal booking appointment. Epilepsy & Behavior

Watkins L, Cock H, Angus-Leppan H, Morley K, Wilcock M, Shankar R, (2019) Valproate MHRA guidance: limitations and opportunities. Frontiers in Neurology. Available from: Front. Neurol. Front. Neurol.

Morley K (2018) Epilepsy in pregnancy: The role of the midwife in risk management. British Journal of Midwifery 26 (9): 564-573 

Morley K (2018) The Royal College of Midwives (RCM) Epilepsy i-module. Poster Abstract. Patient Safety Congress, Manchester    

Morley K (2017) The Royal College of Midwives (RCM) Epilepsy i-module. Poster Abstract. MBRRACE-UK Launch meetings, 2017, London and Manchester   

Morley K (2017)  Exploring midwives experiences of using a maternity epilepsy toolkit. Poster Abstract. MBRRACE-UK Launch meetings, 2017, London and Manchester.  

Morley K (2017) Exploring midwives experiences of using a maternity epilepsy toolkit. Poster Abstract 26 p68. The International League Against Epilepsy (ILAE) British Chapter Conference 2017, Leeds. 

Morley K (2017) Epilepsy i-learn module Royal College of Midwives. Available from: RCM Epilepsy i-learn module  

Morley K (2016, October) Validation of an epilepsy shared-care toolkit designed to reduce disparity in maternity care provision. Poster presented at the International League Against Epilepsy (ILAE) British Chapter Conference 2016, Dublin, Republic of Ireland. 

Morley K (2016) Specialist Midwifery (pt 2) The career journey of an epilepsy specialist midwife practitioner Epilepsy Professional  Autumn 2016 Leeds: Epilepsy Action (42): 24-27

Morley K (2016) More than a midwife Epilepsy Today September 2016 Leeds: Epilepsy Action (131): 18-20

Morley K (2016) Looking forward IN: Academy of Royal Colleges (eds) A vision of healthcare 20/20. London: Academy of Royal Colleges 102-103 pdf

Morley K (2016) Specialist Midwifery (pt 1) The career journey of an epilepsy specialist midwife practitioner Epilepsy Professional Summer 2016 Leeds: Epilepsy Action (41): 18-22

Morley K (2016) Antiepileptic drug management during pregnancy: A shared decision approach. British Journal of Midwifery 24(5): 353-361 Available from:

http://www.magonlinelibrary.com/doi/10.12968/bjom.2016.24.5.353

Morley K (2016) Optimising midwifery care for women with epilepsy. Nursing in Practice. Available from: http://www.nursinginpractice.com/article/optimising-midwifery-care-women-epilepsy

Morley K (2010) Book review: Effective Migraine Treatment in Pregnant & Lactating Women: A Practical Guide. Authors: DA Marcus and PA Bain (2009) Humana Press The Obstetrician & Gynaecologist 12(1): 6 Link

Morley K (2009) Specialist midwife-epilepsy Disability, Pregnancy & Parenthood International 66. 

Morley K (2009) Sudden unexpected disablement Disability, Pregnancy & Parenthood International 66

Morley K (2008) Improving care for women with epilepsy. British Journal of Midwifery 16(10): 649-655 Available from: http://www.magonlinelibrary.com/doi/abs/10.12968/bjom.2008.16.10.31233

How can you empower women to manage their own epilepsy?
How can you empower women to manage thei[...]
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