Maternity epilepsy toolkit1 available for free download. Designed to assist history taking; reduce risk, increase knowledge and awareness and provide a summary of management in pregnancy. For further information click: Professional page. This toolkit has been incorporated into the RCM i-learn epilepsy in pregnancy module, Click: RCM i-learn.
1. Morley K (2020) Reducing risks for pregnant women with epilepsy: A qualitative study exploring experiences of using a toolkit at the antenatal booking appointment. Epilepsy & Behavior
Copyright: Kim Morley
Founder of website:
Kim Morley MSc, INP, RM, RN. Advanced Clinical Practitoner
17/6/21 Risks of sodium valproate. GMC case study scenario for GPs, Pharmacists, epilepsy nurses & health professionals involved in a woman's care partnership: Ethical guidance & learning
16/06/21 Letter to women and girls taking sodium valproate with information re safety, contraception & pregnancy NHS England. If valproate is stopped without receiving specialist advice, seizure control may change and uncontrolled seizures can increase the risks of accidents, injuries and seizure related deaths. Further info: SUDEP Action Epilepsy Society Epilepsy Action
03/05/21 Are you part of a UK professional team offering support to women during pregnancy? Please take part in the National Mapping Survey of Epilepsy in Pregnancy
Learning from neurological complications:MBRRACE-UK - Saving Lives, Improving Mothers’ Care 2020 -
Safety leaflet on epilepsy medicines and pregnancy to help patients and their families understand the risks: GOV.UK
08/07/20 This report captures the voices of victims & their families with hidden conditions associated with harm from valproate, primodos and mesh: The independent Medicines and Medical Device Review First do no Harm
05/07/20 Morley K interview with Dr Ruth Oshikanlu MBE, 2020 Celebrating the Year of the Nurse and Midwife: Nurses & Midwives Talk
06/05/20 Temporary advice during coronavirus (COVID-19) about valproate use by women and girls.
22/03/20 Advice regarding coronavirus (COVID-19) for pregnant women rcog.org.uk
COVID-19 advice for people with epilepsy:
2/2/20 Special Edition: Prevent 21: SUDEP summit International journal publishes research on tackling epilepsy deaths
For further information contact sudep.org
2/2/20 Reducing risks for pregnant women with epilepsy. PDF available for free download until 23/3/20 Elsevier
24/01/20 Valproate use by women and girls update: www.gov.uk
3/01/20 Mothers on antiepileptic drugs can safely breastfeed Medscape.com
6/08/19 Reducing risks for pregnant women with epilepsy: Medscape.com
14/05/19 Predicting seizures in pregnant women with epilepsy. See
16/04/19 Valproate medicines & serious harms in pregnancy: New annual risk acknowledgement form Drug Safety Update volume 12, issue 9: April 2019: 2.
30/03/19 New Guidance document on valproate use in women and girls of childbearing years.
Valproate in children, young people and adults NICE update
18/12/18 Valproate medicines: are you acting in compliance with the pregnancy prevention programme? Gov.UK
2-3/11/18 SUDEP Action Prevent 21 Summit, collaboration of families, professionals, patient support groups, staff, trustees and MP's from SUDEP Action all passionate about reducing preventable deaths from epilepsy. Find out more: SUDEP Action
26/09/18 Valproate Pregnancy Prevention Programme: actions required now from GPs, specialists, and dispensers GOV.UK
12/09/18 Midwives do read my latest article and learn how you can optimise safety for women with epilepsy British Journal of Midwifery
Look out for research article on midwives experiences of using the maternity epilepsy toolkit later this year.
Medicines taken during pregnancy: please report suspected drug reaction, including in the baby or child, on a Yellow Card GOV.UK
'Picnic in the Park'
Join us with your families at 'Queen Elizabeth Olympic Park,Meadow off Essex Way (near Velodrome), London, E20 1DY, UK
Opportunity of getting to know other women with epilepsy. Please bring your own picnic. Further details and booking click: Epilepsy Action
Look forward to meeting you all.
16 June 18
Cannabis treatment for epilepsy. Is there enough evidence of efficacy?
7 June 2018
Pharmacovigilance Risk Assessment Committee (PRAC) assessment report for valproate.
AntiEpileptic drug Monitoring in PREgancy: a double-blind randomised trial on effectiveness and acceptability of monitoring strategies.
14-20 May 2018
27 April 2018
Taking valproate during pregnancy is a serious risk: An update on practice implications:
Jonathan Sher. Click:
24th April 18
Valproate and developmental disorders GOV.UK Click: Drug safety alert
26th March 18
Purple Day for Epilepsy
Do get involved, click:
23rd March 18
Latest recommendations from European Medicines Agency New measures to avoid valproate exposure in pregnancy
9th February 18
PRAC recommends new measures to avoid valproate exposure in pregnancy. Click link and take survey on page 3 European Medicines Agency
5th January 18
Medscape Obs/Gynae & Women's Health. Click:
10th December 17
Maternity epilepsy shared care toolkit updated to include recommendations from MBBRACE-UK
8th December 17
Buccolam (buccal midazolam) brand.
Class 4 Medicines defect Information: Device warning.
7th December 17
MBRRACE-UK Report launch Click: Lay summary with recommendations for women with epilepsy
20th November 17
20 November 17
19th October 17
Valproate and foetal anticonvulsant syndrome discussed in parliament. Click: View the debate
25 September 17
Pharmacovigilance Risk Assessment Committee (PRAC) Public Hearing on valproate and related substances, European Medicines Agency. London. Watch the hearing: EMA Public Hearing
22 September 17
Many women still not aware of risks of taking valproate in pregnancy survey conducted by Epilepsy Society, Epilpsy Action and Young Epilepsy reveals:
18 August 17
Are you a girl or woman under the age of 50, with epilepsy? Please take part in this survey to find out how many women are aware of the risks around the epilepsy drug sodium valproate during pregnancy. The survey is being run by Epilepsy Society, Young Epilepsy and Epilepsy Action https://www.surveymonkey.co.uk/r/SVArisks Please fill in the survey and share with friends and family.
21 July 17
New: 'Join the big conversation' women with epilepsy Facebook support group. Click women with epilepsy
17th July 17
European Medicines Agency Public hearing on valproate risks when prescibed in pregnancy on 26th September 2017. Chance to have your voice heard. Do read Public Hearings Guidance before completing the Application form for participation Closing date 25/08/17: sorry expired now.
16 June 17
RCM launches epilepsy in pregnancy i-learn module for midwives.
Click: epilepsy i-learn module
20 April 17
New evidence in France of harm from epilepsy drug valproate
Click: BBC news
If you take valproate, please seek prompt support from your doctor whilst using effective contraception
4 April 2017
NHS Improvements Safety Alert Resources to support safe use of valproate MHRA Alert
22 March 17
Important information for girls and young women: sodium valproate and pregnancy. Click:
17 March 17
Two students invent a MediVest’ for people with epilepsy.
13 March 2017
EMA launches New Safety Review of prenatal valproate exposure Medscape
CEU Clinical Guidance Drug interactions with hormonal contraception
12 December 2016
New ILAE classification for seizures Medscape
16 November 2016
Development of a core outcome set for epilepsy in pregnancy Al Watter et al, 2016
Click: Professional page
7 November 2016
Cochrane review published click: Professional page
Weston et al (2016) Monotherapy treatment of epilepsy in pregnancy: congenital malformation outcomes in the child
31 October 2016
Women with epilepsy should be better informed about risks of sodium valproate in pregnancy
Some epilepsy medicines reduce the effectiveness of emergency contraception. Click
Emergency contraception leaflet for further information.
For further news & resources, click: Professional page
Please note this website is under regular development and will be converted to easy to read click-on icons, shortly. If you would like anything added contact firstname.lastname@example.org
Last updated 19/6/21