Women with epilepsy
Women with epilepsy  

Peer reviewed 'maternity epilepsy toolkit' available for free download. Designed to assist history taking; reduce risk, increase knowledge and awareness and provide a summary of management in pregnancy. For further information click:  Professional page. This toolkit has been incorporated into the new RCM i-learn epilepsy in pregnancy module, Click: RCM i-learn. The first research project on the toolkit was submitted in Oct. 18 and awaiting assessment.

Cppyright: Kim Morley

 

Founder of website:

Kim Morley, Epilepsy Specialist Nurse/Midwife Practitioner.

RCM National & Regional Award Winner, 'Mum's Midwife of the Year,' 2016. Based at: Royal Hampshire County Hospital, Winchester. Hampshire. SO22 5DG

email: kim.morley@nhs.net  

Facebook support group, the big conversation: women with epilepsy

 

Women can self refer or be referred by a health professional. To action a professional referral, please see your GP or neurology team and ask them to contact me (details above) with your contact details & history summary.

 

In and out of area NHS referrals accepted. If distance/difficulties with transport is a problem, a telephone consultation can be arranged instead of seeing Kim in clinic.

2-3/11/18 SUDEP Action Prevent 21 Summit, collaboration of families, professionals, patient support groups, staff, trustees and MP's from SUDEP Action all passionate about reducing preventable deaths from epilepsy. Find out more: SUDEP Action

 

26/09/18 Valproate Pregnancy Prevention Programme: actions required now from GPs, specialists, and dispensers GOV.UK

 

12/09/18 Midwives do read my latest article and learn how you can optimise safety for women with epilepsy British Journal of Midwifery 

Look out for research article on midwives experiences of using the maternity epilepsy toolkit  later this year.

 

17/07/18 

Medicines taken during pregnancy: please report suspected drug reaction, including in the baby or child, on a Yellow Card GOV.UK

 

14/07/18 12pm

'Picnic in the Park'

Join us with your families  at 'Queen Elizabeth Olympic Park,Meadow off Essex Way (near Velodrome), London, E20 1DY, UK

Opportunity of getting to know other women with epilepsy. Please bring your own picnic. Further details and booking click: Epilepsy Action

Look forward to meeting you all.

 

16 June 18

Cannabis treatment for epilepsy. Is there enough evidence of efficacy?

Pharmaceutical Journal

 

7 June 2018 

Pharmacovigilance Risk Assessment Committee (PRAC) assessment report for valproate. 

PRAC valproate and related substances

 

May 2018 

AntiEpileptic drug Monitoring in PREgancy: a double-blind randomised trial on effectiveness and acceptability of monitoring strategies. 

 

14-20 May 2018

27 April 2018

Taking valproate during pregnancy is a serious risk: An update on practice implications:

Jonathan Sher. Click: 

Interrnational Journal of Birth and Parent Education

 

24th April 18

Valproate and developmental disorders GOV.UK Click: Drug safety alert

 

26th March 18

Purple Day for Epilepsy

Do get involved, click:

Epilepsy Action

Epilepsy Society

SUDEP Action

Epilepsy Research

 

23rd March 18 

Latest recommendations from European Medicines Agency New measures to avoid valproate exposure in pregnancy

 

9th February 18

PRAC recommends new measures to avoid valproate exposure in pregnancy. Click link and take survey on page 3  European Medicines Agency

 

5th January 18

Medscape Obs/Gynae & Women's Health. Click:

Topiramate dose in Mom affects oral cleft Risk in child

 

10th December 17

Maternity epilepsy shared care toolkit updated to include recommendations from MBBRACE-UK 

 

8th December 17

Buccolam (buccal midazolam) brand.

Class 4 Medicines defect Information: Device warning

 

7th December 17

MBRRACE-UK Report launch Click: Lay summary with recommendations for women with epilepsy

20th November 17

 

20 November 17

CEU Clinical Guidance: Drug interactions with hormonal contraception. Click FSRH

 

19th October 17

Valproate and foetal anticonvulsant syndrome discussed in parliament. Click: View the debate

 

25 September 17

Pharmacovigilance Risk Assessment Committee (PRAC) Public Hearing on valproate and related substances, European Medicines Agency. London. Watch the hearing: EMA Public Hearing

 

22 September 17

Many women still not aware of risks of taking valproate in pregnancy survey conducted by Epilepsy Society, Epilpsy Action and Young Epilepsy reveals: 

Link to Epilepsy Action covering this survey 

 

18 August 17

Are you a girl or woman under the age of 50, with epilepsy? Please take part in this survey to find out how many women are aware of the risks around the epilepsy drug sodium valproate during pregnancy. The survey is being run by Epilepsy Society, Young Epilepsy and Epilepsy Action https://www.surveymonkey.co.uk/r/SVArisks Please fill in the survey and share with friends and family.

 

21 July 17 

New: 'Join the big conversation' women with epilepsy Facebook support group. Click women with epilepsy

 

17th July 17

European Medicines Agency Public hearing on valproate risks when prescibed in pregnancy on 26th September 2017. Chance to have your voice heard. Do read Public Hearings Guidance before completing the Application form for participation Closing date 25/08/17: sorry expired now.

 

16 June 17

RCM launches epilepsy in pregnancy i-learn module for midwives.

Click: epilepsy i-learn module 

20 April 17

New evidence in France of harm from epilepsy drug valproate

Click: BBC news

If you take valproate, please seek prompt support from your doctor whilst using effective contraception

4 April 2017

NHS Improvements Safety Alert Resources to support safe use of valproate  MHRA Alert

22 March 17

Important information for girls and young women: sodium valproate and pregnancy. Click:

Medicines For Children

17 March 17

Two students invent a MediVest’ for people with epilepsy. 

Epilepsy vest award

13 March 2017

EMA launches New Safety Review of prenatal valproate exposure Medscape

January 2017

CEU Clinical Guidance Drug interactions with hormonal contraception

12 December 2016

New ILAE classification for seizures Medscape

16 November 2016

Development of a core outcome set for epilepsy in pregnancy Al Watter et al, 2016

Click: Professional page

7 November 2016

Cochrane review published click: Professional page

Weston et al (2016) Monotherapy treatment of epilepsy in pregnancy: congenital malformation outcomes in the child 

31 October 2016

Women with epilepsy should be better informed about risks of sodium valproate in pregnancy

Epilepsy Action survey. See Professional page news update for further advice.

September 2016

Some epilepsy medicines reduce the effectiveness of emergency contraception. Click 

Emergency contraception leaflet for further information.

 

For further news & resources, click: Professional page

 

Please note this website is under regular development and will be converted to easy to read click-on icons, shortly. If you would like anything added  contact kim.morley@nhs.net

 

Last updated 04/11/18

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