Women with epilepsy
Women with epilepsy  

Maternity epilepsy toolkit1 available for free download. Designed to assist history taking; reduce risk, increase knowledge and awareness and provide a summary of management in pregnancy. For further information click:  Professional page. This toolkit has been incorporated into the RCM i-learn epilepsy in pregnancy module, Click: RCM i-learn.

1. Morley K (2020) Reducing risks for pregnant women with epilepsy: A qualitative study exploring experiences of using a toolkit at the antenatal booking appointment. Epilepsy & Behavior

Copyright: Kim Morley

Founder of website:

Kim Morley MSc, INP, RM, RN. Advanced Clinical Practitoner 


22/6/22 Research opportunity: Experiences of women with two or more long-term health conditions in pregnancy mumpredict


21/6/22 Independent Neurology Inquiry, Belfast Report


27/4/22 New guideline: Epilepsies in children, young people and adults NICE guideline [NG217] NICE


26/1/22 Epilepsy Research UK Epilepsy in pregnancy in the clinic Epilepsy Research UK

6/1/22 Kim Morley blog for epilepsy research: Epilepsy Research UK


11/11/21. Following latest MBRRACE UK Maternal Dec 2021 report. It remains vital health professionals and women with epilepsy in pregnancy and postnatal year are aware of risk reduction strategies for sudden unexpected death in epilepsy (SUDEP).


17/6/21 Risks of sodium valproate. GMC case study scenario for GPs, Pharmacists, epilepsy nurses & health professionals involved in a woman's care partnership: Ethical guidance & learning


16/06/21 Letter to women and girls taking sodium valproate with information re safety, contraception & pregnancy NHS England. If valproate is stopped without receiving specialist advice, seizure control may change and uncontrolled seizures can increase the risks of accidents, injuries and seizure related deaths. Further info: SUDEP Action Epilepsy Society Epilepsy Action


03/05/21 Are you part of a UK professional team offering support to women during pregnancy? Please take part in the National Mapping Survey of Epilepsy in Pregnancy


16/02/21 Midwives 

Join us for this GOLD Midwifery 2021 Online Conference presentation with Kim Morley, MSc, INP, RM, RN! "Epilepsy in Pregnancy: Reducing Risks with a Multiprofessional Healthcare Team" is an info-packed presentation with the latest evidence on the impact of care on outcomes for mothers and infants. You'll learn about the potential health burden associated with epilepsy, how to reduce risks during pregnancy, and the importance of a multi-professional approach.

GOLD conference



Learning from neurological complications:MBRRACE-UK - Saving Lives, Improving Mothers’ Care 2020 - 

Lay Summary




Safety leaflet on epilepsy medicines and pregnancy to help patients and their families understand the risks: GOV.UK


08/07/20 This report captures the voices of victims & their families with hidden conditions associated with harm from valproate, primodos and mesh: The independent Medicines and Medical Device Review First do no Harm


05/07/20 Morley K interview with Dr Ruth Oshikanlu MBE, 2020 Celebrating the Year of the Nurse and Midwife: Nurses & Midwives Talk


06/05/20 Temporary advice during coronavirus (COVID-19) about valproate use by women and girls.

Click: www.GOV.UK 


22/03/20 Advice regarding coronavirus (COVID-19) for pregnant women rcog.org.uk

COVID-19 advice for people with epilepsy: 

Epilepsy Society

Epilepsy Action 

Epilepsy Scotland


2/2/20 Special Edition: Prevent 21: SUDEP summit International journal publishes research on tackling epilepsy deaths


For further information contact sudep.org


2/2/20 Reducing risks for pregnant women with epilepsy. PDF available for free download until 23/3/20 Elsevier  


24/01/20 Valproate use by women and girls update: www.gov.uk


3/01/20 Mothers on anti-seizure medicines can safely breastfeed Medscape.com


6/08/19 Reducing risks for pregnant women with epilepsy: Medscape.com 


14/05/19 Predicting seizures in pregnant women with epilepsy. See 

useful articles


16/04/19  Valproate medicines & serious harms in pregnancy: New annual risk acknowledgement form Drug Safety Update volume 12, issue 9: April 2019: 2.


30/03/19 New Guidance document on valproate use in women and girls of childbearing years. 


28/03/19 New

Valproate in children, young people and adults NICE update


18/12/18 Valproate medicines: are you acting in compliance with the pregnancy prevention programme? Gov.UK 


2-3/11/18 SUDEP Action Prevent 21 Summit, collaboration of families, professionals, patient support groups, staff, trustees and MP's from SUDEP Action all passionate about reducing preventable deaths from epilepsy. Find out more: SUDEP Action


26/09/18 Valproate Pregnancy Prevention Programme: actions required now from GPs, specialists, and dispensers GOV.UK


12/09/18 Midwives do read my latest article and learn how you can optimise safety for women with epilepsy British Journal of Midwifery 

Look out for research article on midwives experiences of using the maternity epilepsy toolkit  later this year.




Medicines taken during pregnancy: please report suspected drug reaction, including in the baby or child, on a Yellow Card GOV.UK


14/07/18 12pm

'Picnic in the Park'

Join us with your families  at 'Queen Elizabeth Olympic Park,Meadow off Essex Way (near Velodrome), London, E20 1DY, UK

Opportunity of getting to know other women with epilepsy. Please bring your own picnic. Further details and booking click: Epilepsy Action

Look forward to meeting you all.


16 June 18

Cannabis treatment for epilepsy. Is there enough evidence of efficacy?

Pharmaceutical Journal


7 June 2018 

Pharmacovigilance Risk Assessment Committee (PRAC) assessment report for valproate. 

PRAC valproate and related substances


May 2018 

AntiEpileptic drug Monitoring in PREgancy: a double-blind randomised trial on effectiveness and acceptability of monitoring strategies. 


14-20 May 2018

27 April 2018

Taking valproate during pregnancy is a serious risk: An update on practice implications:

Jonathan Sher. Click: 

Interrnational Journal of Birth and Parent Education


24th April 18

Valproate and developmental disorders GOV.UK Click: Drug safety alert


26th March 18

Purple Day for Epilepsy

Do get involved, click:

Epilepsy Action

Epilepsy Society

SUDEP Action

Epilepsy Research


23rd March 18 

Latest recommendations from European Medicines Agency New measures to avoid valproate exposure in pregnancy


9th February 18

PRAC recommends new measures to avoid valproate exposure in pregnancy. Click link and take survey on page 3  European Medicines Agency


5th January 18

Medscape Obs/Gynae & Women's Health. Click:

Topiramate dose in Mom affects oral cleft Risk in child


10th December 17

Maternity epilepsy shared care toolkit updated to include recommendations from MBBRACE-UK 


8th December 17

Buccolam (buccal midazolam) brand.

Class 4 Medicines defect Information: Device warning


7th December 17

MBRRACE-UK Report launch Click: Lay summary with recommendations for women with epilepsy

20th November 17


20 November 17

CEU Clinical Guidance: Drug interactions with hormonal contraception. Click FSRH


19th October 17

Valproate and foetal anticonvulsant syndrome discussed in parliament. Click: View the debate


25 September 17

Pharmacovigilance Risk Assessment Committee (PRAC) Public Hearing on valproate and related substances, European Medicines Agency. London. Watch the hearing: EMA Public Hearing


22 September 17

Many women still not aware of risks of taking valproate in pregnancy survey conducted by Epilepsy Society, Epilpsy Action and Young Epilepsy reveals: 

Link to Epilepsy Action covering this survey 


18 August 17

Are you a girl or woman under the age of 50, with epilepsy? Please take part in this survey to find out how many women are aware of the risks around the epilepsy drug sodium valproate during pregnancy. The survey is being run by Epilepsy Society, Young Epilepsy and Epilepsy Action https://www.surveymonkey.co.uk/r/SVArisks Please fill in the survey and share with friends and family.


21 July 17 

New: 'Join the big conversation' women with epilepsy Facebook support group. Click women with epilepsy


17th July 17

European Medicines Agency Public hearing on valproate risks when prescibed in pregnancy on 26th September 2017. Chance to have your voice heard. Do read Public Hearings Guidance before completing the Application form for participation Closing date 25/08/17: sorry expired now.


16 June 17

RCM launches epilepsy in pregnancy i-learn module for midwives.

Click: epilepsy i-learn module 

20 April 17

New evidence in France of harm from epilepsy drug valproate

Click: BBC news

If you take valproate, please seek prompt support from your doctor whilst using effective contraception

4 April 2017

NHS Improvements Safety Alert Resources to support safe use of valproate  MHRA Alert

22 March 17

Important information for girls and young women: sodium valproate and pregnancy. Click:

Medicines For Children

17 March 17

Two students invent a MediVest’ for people with epilepsy. 

Epilepsy vest award

13 March 2017

EMA launches New Safety Review of prenatal valproate exposure Medscape

January 2017

CEU Clinical Guidance Drug interactions with hormonal contraception

12 December 2016

New ILAE classification for seizures Medscape

16 November 2016

Development of a core outcome set for epilepsy in pregnancy Al Watter et al, 2016

Click: Professional page

7 November 2016

Cochrane review published click: Professional page

Weston et al (2016) Monotherapy treatment of epilepsy in pregnancy: congenital malformation outcomes in the child 

31 October 2016

Women with epilepsy should be better informed about risks of sodium valproate in pregnancy

Epilepsy Action survey. See Professional page news update for further advice.

September 2016

Some epilepsy medicines reduce the effectiveness of emergency contraception. Click 

Emergency contraception leaflet for further information.


For further news & resources, click: Professional page


Please note this website is under regular development and will be converted to easy to read click-on icons, shortly. If you would like anything added  contact kim.morley@nhs.net


Last updated 19/6/21

Print Print | Sitemap
© Kim Morley Please reference publication material used from this site.